I’ve talked a little on here about the fact that I have Hashimoto’s Thyroiditis. Since January 10, 2015, I have been living with severe pain on the left side of my thyroid. After wrangling between different doctors, I finally got referred to a surgeon. I waited weeks for this appointment. Every day, my big thought was, “I only have to wait a bit longer and the pain will stop.”
Sadly, that was not the case.
Today, for the appointment, I was met by the PA, not the surgeon. She proceeded to tell me that my pain has nothing to do with my thyroid because my thyroid looks almost normal. (She did finally admit that I have scarring and dense tissue–which I already knew. As well as 19 small nodules, but who is counting.)
Pain is not normal. In any way shape or form. Plus, I already had a study that specifically related severe thyroid pain caused by Hashimoto’s to only being cured by thyroid removal.
When I mentioned the study, she adopted what I will call a “hoity-toity” attitude.
She is not the one in pain, dammit.
Well, I left the office with a test for espohageal function (Yet another doctor who swears all my issues are caused by Gastric Reflux because I am fat. If that were the case, I would be overjoyed. But, it is not. I have done it all before. Gastric Reflux medication does nothing for my symptoms. In fact, it gives me a whole other new set of problems where I have to sit close to the bathroom all day.) And, I have to go to my GP (or PCP for you newbies) for x-rays of my neck because “You could have twinged your neck because of your previous whiplash.”
My whiplash was in 1994. The pain I am experiencing is in the front of my throat- where the left lobe of my thyroid is I might add. It is also on the outside of my neck. Not inside my throat. So, it would be pretty darn amazing for gastric reflux to cause discomfort where acid could not reach.
So, I am in pain, pissed off, and hoping I don’t end up with stage 4 thyroid cancer by the time they stop messing around with me. And, yes, that has happened. A lady I know from a Hashimoto’s group. It took her 15 years to get a doctor to pay attention to her. Her thyroid always showed up as “normal” on ultrasounds. Her levels were normal on medication. And, yet, she had swelling and a feeling of fullness (which is what prompted her to go to a doctor in the first place) for ten years. Then, on the eleventh year, she started experiencing pain in her thyroid. Doctors brushed her off like they are doing with me. When she finally developed a goiter that was big enough for them to pay attention, she already had stage 4 thyroid cancer.
Don’t let this me you. I, for one, plan on bombarding the surgeon’s office with studies and other materials in the hopes that someone actually reads it and educates themselves.